India Pushing Ahead With Rare Disease Policy Plan

India appears to be on course to developing a national rare disease policy, with the adoption of a specific definition for rare diseases and the initiation of a rare disease registry in the country.

Mutant flower
INDIA IS READYING ITS RARE DISEASE POLICY • Source: Shutterstock

India appears to have taken definitive steps towards a national rare disease policy, setting out a definition for such disorders in the country.

The definition adopted earlier this month specifies that a disease or disorder is defined as rare in India when it affects fewer than 1 in 2,500 individuals – along the lines of the definition in the EU where a

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