Who Can Represent Patients? Advocates Worry They Are Being Pushed Out Of The Conversation

Patient advocacy groups suggest US state and federal agencies are trying to exclude them from certain conversations due to drug industry connections and perceived bias. 

person up front sad to be left out of larger group gathering in background
Some patient advocates worry they are being excluded from some drug pricing conversations. • Source: Shutterstock

Patient advocacy group leaders are raising concerns about what they characterize as recent attempts by government entities to limit who can publicly represent the patient perspective in discussions about drug costs.

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