‘Fear And Anxiety’ As Rare Disease Community Confronts US Government Actions

The sudden halt to grants and health agency communications is causing stress for the rare disease advocacy community, speakers said at a recent rare disease symposium.

Red human figure stands out in line of identical wooden figures.
(H_Ko/Shutterstock)

The US Health and Human Services Department’s communications freeze and President Trump’s threat to halt federal grant funding have stressed the rare disease community.

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