EU HTA Regulation A Positive Move For Rare Disease Therapies, says EURORDIS Chief

Greater transparency around EU health technology assessment processes “can only be a good thing” for innovative rare disease therapies, Virginie Bros-Facer, the new CEO of the EU network of rare disease patient organizations, EURORDIS, tells the Pink Sheet.

Virginie Bros-Facer, CEO of EURORDIS-Rare Disease Europe (EURORDIS-Rare Disease Europe)

The incoming EU Health Technology Assessment (HTA) Regulation will “positively impact” the assessment of new technologies for rare diseases, according to Virginie Bros-Facer, CEO of EURORDIS-Rare Diseases Europe.

“The regulation really should enhance the transparency of assessments” according to Bros-Facer, who became EURORDIS’s CEO in March. “That can only be a good thing for those new, innovative treatments,”...

Key Takeaways
  • The new EU HTA Regulation could help the developers of rare diseases to generate the data required for health technology assessments, Virginie Bros-Facer, the CEO...

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